Tag: ORDI
Race for 7 to raise awareness of rare diseases
The 7000 metres of race is to bring attention to the needs of estimated 70 million rare disease patients in India..........
Need to build global confidence & trust in clinical research in...
ISCR Conference concludes on note of optimism and hope in Mumbai with stakeholders agreeing on the need to take proactive approach to quality to mitigate negative perceptions....
Rare Genomics Institute & ORDI receive Sanofi Genzyme’s PAL award
Rare Genomics Institute and Organization for Rare Diseases India are recipients of Sanofi Genzyme’s PAL Award 2016 to develop rare disease online learning modules....
Precision medicine can offer hope to rare disease patients
The rare diseases have not received the attention they deserved within the health policy initiatives in India, feels Prasanna Kumar B Shirol.....
BioVoice eMag August 2016 Issue-4 Volume-1
BioVoice eMag August 2016 Issue-4 Volume-1:
This issue in its cover story puts spotlight on recent cases of re-emergence of Diphtheria in Kerala due to...
Patients appeal govt to ensure free treatment for the rare diseases
Appeal to the government to provide free treatment for patients with Lysosomal Storage Disorders (LSDs)....
Race for 7: Bangalore runs to raise voice of rare disease...
Matching strides with those of rare disease patients, a few thousand Bangaloreans participated in Race for 7, a unique....
Bangalore set to host ‘Race Against Rare Diseases’
The 7 km run to be flagged off on February 28, 2016 at St. Joseph’s Indian High School , Bangalore will target 7000 people....