Tag: Rare Disease
Rare disease patients’ never-ending ordeal
Rare disease patients awaiting treatment despite sanction of 3 Crore rupees fund from the Karnataka Government...…………...
1 in 20 Indians affected by a rare disease: ORDI
The Organization for Rare Diseases India (ORDI) is organizing the ‘Race For 7’ run to raise awareness for rare disease patients in multiple cities across India during 2019..................
Sanofi Genzyme observes Rare Disease Day in India
The company said that it stands committed to the cause of supporting patients with rare and debilitating disorders............
Effective implementation of national rare diseases policy essential: Experts
Eminent experts have applauded the first year of National Policy for Treatment of Rare Diseases while also emphasizing on the need for its effective implementation................
Race for 7: Bangalore & Mumbai walk for rare diseases
Race for 7 which was simultaneously held in Bangalore and Mumbai in India (a smaller run was held in Jaipur). In addition, a Race for 7 was also held in Washington with a smaller event in South Carolina, a great example of a Make in India event going global.......
“We plan to bring first in line treatment for acute lymphoblastic...
Mentioned Mr Vineet Singhal, Country Head, Shire India who shared his detailed views on his company’s activities as well as the social and policy aspects related to rare diseases. Read the full interview........
GNH India clears audit to trade ‘Orphan Drugs’ with UK
With this new development, GNH India becomes one more pharma wholesaler among few to have forayed into the United Kingdom market as a legal distributor of rare and life-saving drugs..........
Shire launches “Rare Count” campaign to personalize global impact of rare...
For every “count,” Shire will donate to leading rare disease organizations. The campaign aims to reach out to 70 million patients in India who are living with a rare disease...
Clinical research will help us find more effective treatment for rare...
The Indian Society for Clinical Research (ISCR) is of the view that more research in required in India to address the unique needs of rare disease patients......
Race for 7: Bengaluru matches strides with rare disease patients
Thousands care for rare event held to commemorate rare disease day.......