Tag: Rare Diseases
Prioritize Indigenous manufacturing & multi-ministerial coordination to tackle rare diseases: Dr...
Dr Paul who is a member of NITI Aayog was speaking at the National Conference on ‘Rare Diseases’ organized by FICCI, NITI Aayog, and IMPF
CrisprBits opens Research & Innovation Centre for CRISPR gene editing &...
Over the next 6 months, CrisprBits plans to introduce Novel applications of CRISPR in building iPSC (Induced pluripotent stem cells) models for rare diseases
Lupin appoints Claus Jepsen as President, Global Specialty
Claus joins Lupin from Takeda Pharmaceuticals, where he led the Global Strategy for Rare Diseases
Twist Bioscience and MedGenome partner to launch HOPE for Rare Diseases...
Collaboration offers affordable whole exome sequencing for underprivileged patients to improve rare disease diagnosis and treatment in India
Rare Diseases India Foundation forms National Hunter Alliance
The newly formed alliance unites medical experts, government officials, and patient advocates to push for improved care
Health Ministry to set up Technical Expert Group for SMA, budget...
Dr. L Swasticharan, Additional Director General at the Directorate General of Health Services (DGHS), announced these developments at SMArtCon2024
SMArtCon2024: Cure SMA Foundation to host national conference on Spinal Muscular...
Two-day event to focus on building a sustainable ecosystem for SMA and other rare diseases, bringing together patients and medical experts
Rare disease patients write to new health minister, demand sustained funding...
Advocates highlight gaps in the National Policy for Rare Diseases implementation and seek urgent attention to save lives
Alliance & Partnerships for Patient Innovation & Solutions deliberates on shaping...
The conference called for accelerating access to evidence-based care to continue improving outcomes for patients
K J Somaiya Hospital & Research Centre inaugurates Advanced Centre for...
It is a first of its kind facility with state-of-the-art infrastructure