Tag: Rare
Thousands of patients could have rare life-threatening diseases without knowing it,...
TUBB4a leukodystrophy - an incurable genetic condition that damages the central nervous system and can be deadly to babies and young children
Zydus Cadila to divest its India focused animal health business
The deal is to sell one of the two business undertakings of ZAHL, called Animal Healthcare Established Markets Undertaking for a lump sum consideration of Rs. 2921 crores.....................
Andhra Pradesh doctor beats Leukemia after complex bone marrow transplantation at...
Battling with Acute Myeloid Leukemia, Dr Rama Devi was successfully treated by Dr. Ganesh Jaishetwar, Bone Marrow Transplant Surgeon.....................
ORDI to hold Racefor7 to raise awareness & advocacy for rare...
The fifth edition of the vent by ORDI will be on a much larger scale than before with events scheduled in 20 India cities..................
Researchers discover genetic mutation causing rare colorectal disorder in Gujarati family
This is a first-of-its-kind genetic study in India on a rare inherited condition involving a patient diagnosed with Familial Adenomatous Polyposis (FAP) and 25 members of his immediate and extended family................
National policy for rare genetic diseases formulated
On the whole, govt says that the policy seeks to strike a balance between the interest of patients of Rare Diseases and health system sustainability.........
Father of a rare disease child patient appeals for govt’s attention
New Delhi based Praveen Tyagi's son Garvit was detected with rare genetic disorder, Spinal Muscular Atrophy that has only one treatment option that cures the disease by only 40 percent. He has sought health ministry's help...