Govt launches national crowdfunding portal for rare disease patients

New Delhi: The Department of Health and Family Welfare has launched a digital portal for crowdfunding and voluntary donations for the treatment of patients of rare diseases in accordance with the mandate of the National Policy for Rare Diseases 2021.

This was stated in a written reply in the parliament recently by the Minister of State (Health and Family Welfare), Dr Bharti Pravin Pawar.

The digital portal may be accessed through this link.

Pawar added further: “The Department of Pharmaceuticals  Production Linked Incentive (PLI) Scheme for Pharmaceuticals provides for financial incentives to manufacturers selected under the scheme for domestic manufacturing of various product categories, which also include Orphan drugs. The guidelines for the Scheme are available on the website of the Department of Pharmaceuticals under the tab-Schemes.”